Tuesday, 17 March 2015 07:06

Rare Disease Day Conference 2015 at Ohio Capital

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EthansCure was present at the Ohio Capital in Columbus supporting Rare Disease Day. We would like to thank NORD for organizing the event and helping us all to raise awareness for barter syndrome. Daniel Hoffman spoke on behalf of EthansCure educating those present on Bartter Syndrome and Tier 3 Drugs. Please get involved and help us bring light to a very dark field. Contact your State Representative or Congressman, join our Facebook or other social media sites to grow our community.


Read 10749 times Last modified on Friday, 20 March 2015 04:48


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