EVENTS

COLUMBUS - Yesterday, Senator Joe Schiavoni (D-Boardman) and Senator Capri S. Cafaro (D-Hubbard) introduced S.B. 128, which would designate May 30th as Bartter Syndrome Awareness Day. The Senate passed S.B. 128 with unanimous support. “Bartter Syndrome is not well known, which often means those suffering from it wait far too…
Washington, D.C. – Congressman Tim Ryan (D-OH) and Congressman David Joyce (R-OH) today introduced a resolution to designate each May 30th as National Bartter Syndrome Day. This designation would give much needed attention and increase awareness for the one million people worldwide affected by Bartter Syndrome and their families working…
Friday, 06 February 2015 15:38

Thank You Salvatores and Generous Donors

We would like to send out a special thanks to Salvatore's Restaurants and Rose for sponsoring a fundraiser last weekend for the Bartter Syndrome Foundation. Your efforts will not go unnoticed and it is the support and generosity from people like you that allow us to continue to raise awareness…
The Bartter Syndrome Foundation, 'EthansCure.org' has received verification from the United States Internal Revenue Service for 501(c)3 public charity status. A public charity, identified by the Internal Revenue Service (IRS) as "not a private foundation", normally receives a substantial part of its income, directly or indirectly, from the general public…
The vast majority of the population is unaware and not informed about the myriad of individuals suffering from rare genetic kidney disorders. By purchasing a Bracelet, you are making an effort to reach out to those affected by rare genetic disorders and show your support by promoting awareness. The $5…
Monday, 10 February 2014 06:57

EthansCure Winter Fundraiser 2013

December 7th 2013. Thanks to all that came out in support of those with rare genetic kidney disorders. We had a great turn-out at Jack Perry's Pub & Grill. A special thanks goes out to Brent Furrie for hosting the event. Our efforts generated the remaining funds for our IRS…
Monday, 10 February 2014 06:33

EthansCure Halloween Fundraiser

October 22, 2013. The Bartter Syndrome Foundation held its first ever Fundraiser! The event was a Halloween Fundraiser and included a haunted maze, games for children, raffle baskets and 50/50. Thank you to all our sponsors and volunteers for making this event a success. Our organization was able to raise…

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