December 7th 2013. Thanks to all that came out in support of those with rare genetic kidney disorders. We had a great turn-out at Jack Perry's Pub & Grill. A special thanks goes out to Brent Furrie for hosting the event. Our efforts generated the remaining funds for our IRS documents and allowed us to prepare for making a Bartter and Gitelman Syndrome Awareness Day. We need help and ideas for fundraising in 2014...Please contact EthansCure with your ideas and/or support.
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In the News
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FDA Lifts Clinical Hold; Green-Lights Vertex and CRISPR’s Sickle Cell Gene Therapy TrialPosted on: 14 October 2018, source: BioSpace
The U.S. Food...- Screening Clinical Cell Products for Replication Competent Retrovirus: The National Gene Vector Biorepository Experience
Posted on: 17 September 2018, source: Mol Ther Methods Clin... - Screening Clinical Cell Products for Replication Competent Retrovirus: The National Gene Vector Biorepository Experience