December 7th 2013. Thanks to all that came out in support of those with rare genetic kidney disorders. We had a great turn-out at Jack Perry's Pub & Grill. A special thanks goes out to Brent Furrie for hosting the event. Our efforts generated the remaining funds for our IRS documents and allowed us to prepare for making a Bartter and Gitelman Syndrome Awareness Day. We need help and ideas for fundraising in 2014...Please contact EthansCure with your ideas and/or support.
New Arrivals
In the News
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FDA Approves First Cell-Based Gene Therapy For Adult Patients with Relapsed or Refractory MCLPosted on: 4 August 2020, source: FDA
The U.S. Food...- Two deaths in gene therapy trial for rare muscle disease
Posted on: 30 June 2020, source: ScienceMag
Two boys have... - Two deaths in gene therapy trial for rare muscle disease