December 7th 2013. Thanks to all that came out in support of those with rare genetic kidney disorders. We had a great turn-out at Jack Perry's Pub & Grill. A special thanks goes out to Brent Furrie for hosting the event. Our efforts generated the remaining funds for our IRS documents and allowed us to prepare for making a Bartter and Gitelman Syndrome Awareness Day. We need help and ideas for fundraising in 2014...Please contact EthansCure with your ideas and/or support.
New Arrivals
In the News
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Gene therapy for beta-thalassemia safe, effective in peoplePosted on: 19 April 2018, source: EurekAlert
In a powerful...- 13-Year-Old Boy Is First Person in US to Receive Newly Approved Gene Therapy for Blindness
Posted on: 22 March 2018, source: Gizmodo
On Tuesday, a... - 13-Year-Old Boy Is First Person in US to Receive Newly Approved Gene Therapy for Blindness