October 22, 2013. The Bartter Syndrome Foundation held its first ever Fundraiser! The event was a Halloween Fundraiser and included a haunted maze, games for children, raffle baskets and 50/50. Thank you to all our sponsors and volunteers for making this event a success. Our organization was able to raise enough money to pay for our state of Ohio incorporation fees and also contribute towards our IRS fees for 501(c)3 status.
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In the News
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FDA Approves First Cell-Based Gene Therapy For Adult Patients with Relapsed or Refractory MCLPosted on: 4 August 2020, source: FDA
The U.S. Food...- Two deaths in gene therapy trial for rare muscle disease
Posted on: 30 June 2020, source: ScienceMag
Two boys have... - Two deaths in gene therapy trial for rare muscle disease