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Jessica is from Central Minnesota, USA. She holds an Associates degree in arts accounting with a business management emphasis. Her son Samuel has type 4 neonatal barter syndrome.
In the News
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Gene therapy for cancer halted after patient deathPosted on: 13 September 2017, source: BioNews
Two trials assessing...- FDA makes the first gene therapy Kymriah available for treatment of pediatric ALL
Posted on: 31 August 2017, source: News Medical Life Sciences - FDA makes the first gene therapy Kymriah available for treatment of pediatric ALL
Ethan's Journey
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Ohio Rare Disease Day 2016
ETHAN'S JOURNEY Feb 17, 2016 | 15:25 pm
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Created by Ethan Hoffman -
Rare Disease Day and EthansCure Coalition
ETHAN'S JOURNEY Feb 15, 2015 | 15:32 pm
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On February 18th there will be a seminar in Columbus, Ohio benefiting rare diseases. EthansCure and the Bartter Syndrome Foundation will be speaking on behalf of barter syndrome. We will be introducing[…]