Sodium chloride, better known as salt, is vital for the organism, and the kidneys play a crucial role in the regulation of sodium balance. However, the underlying mechanisms of sodium balance are not yet completely understood. Researchers of the Max Delbr-ck Center for Molecular Medicine (MDC) Berlin-Buch, Charit- - Universit-tsmedizin…
Wednesday, 17 February 2016 22:25

Ohio Rare Disease Day 2016

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Created by Ethan Hoffman
Ethan Hoffman, 11 years old is an affluent advocate for his disorder termed bartter syndrome. He attended the Rare Disease Day Conference 2015 in Columbus Ohio with his parents. He is a warrior and champion raising awareness and advocacy for bartter syndrome.
Sunday, 15 February 2015 22:32

Rare Disease Day and EthansCure Coalition

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On February 18th there will be a seminar in Columbus, Ohio benefiting rare diseases. EthansCure and the Bartter Syndrome Foundation will be speaking on behalf of barter syndrome. We will be introducing barter syndrome and raising awareness into this rare disorder. If you are asking yourself, "How can I be…
Sunday, 28 December 2014 23:32

Boy’s struggle raises awareness

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At first glance, Ethan Hoffman looks like any average 11-year-old boy. But over the past decade, the Howland boy’s journey through childhood has been filled with challenges and hope. Ethan has a rare disorder known as Bartter Syndrome. It’s a disease that affects the kidneys. After four years of trying…
Sunday, 28 December 2014 22:35

Happy Holidays from

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We thank you ALL for your continued support this year and look forward to a prosperous 2015. This past year was difficult, but successful. Bartter Syndrome Awareness Month has passed both the Senate and House of Representatives in the State of Ohio. In the next year we will push our…
Friday, 30 May 2014 05:30

Happy 11th Birthday Ethan Hoffman

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Ethan, You are truly an inspiration to us All. We wish you a very Happy 11th Birthday! May all your dreams and wishes come true. Keep on fighting for yourself and all of the Bartter Syndrome carriers around the world. God Bless and enjoy your day.

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