Sunday, 22 March 2015 17:05

Ethan Hoffman in NORD Video for Rare Disease Day 2015 Featured

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Ethan Hoffman, 11 years old is an affluent advocate for his disorder termed bartter syndrome. He attended the Rare Disease Day Conference 2015 in Columbus Ohio with his parents. He is a warrior and champion raising awareness and advocacy for bartter syndrome.

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Ethan's Journey