Sunday, 15 February 2015 22:32

Rare Disease Day and EthansCure Coalition

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On February 18th there will be a seminar in Columbus, Ohio benefiting rare diseases. EthansCure and the Bartter Syndrome Foundation will be speaking on behalf of barter syndrome.  We will be introducing barter syndrome and raising awareness into this rare disorder. If you are asking yourself, "How can I be involved, how can help raise awareness for barter syndrome?" You are in luck, please copy and print the above image displaying both the Rare Disease Logo along with Support for Bartter Syndrome. After printing, please post your family holding the above photograph and post on the Timeline at the Bartter Syndrome Foundation's Facebook Page. By telling your story and sharing your photo, you will help others to know what it is like to live with barter syndrome. Please share with ALL friends on Facebook to accelerate educating the general public on this rare disorder.

Read 5394 times Last modified on Monday, 23 March 2015 07:47

Ethan's Journey