Sunday, 28 December 2014 22:35

Happy Holidays from EthansCure.org

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We thank you ALL for your continued support this year and look forward to a prosperous 2015. This past year was difficult, but successful. Bartter Syndrome Awareness Month has passed both the Senate and House of Representatives in the State of Ohio. In the next year we will push our ambitions to Washington DC to nominate a National Awareness Day for Bartter Syndrome. We are thankful to our donors that allow us to pursue our endeavors and goal for awareness month. Please encourage Friends and Family members to share the link for the Bartter Awareness Bracelets; so we can spread awareness and advocacy for this rare disease: http://www.barttersyndromefoundation.org/index.php/en/advocacy/advocacy-store/catalog-accessories/accessories-wristband

 

Read 3754 times Last modified on Monday, 29 December 2014 20:08

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